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new to ng Re: new to ng -- Posted by Ozgirl on 12-10-04 22:47
Rainey wrote: >> Chris type 1 or 2? Diabetes control is more about carb
>> control rather than calorie control, perhaps you can give
>> the group an insight into Chris's daily diet regime?
Control >> is difficult with the drugs you mentioned being needed
for >> anti rejection but it may not be an impossibility. Sorry
>> that you both are going through such a trying time,
>> physically and emotionally.
>
> chris and i are both 26. he is a type 1 diabetic.
> i usually cook every meal, as chris and his dad own their
own > company, so even tho he is not able to work, he can still
be a pencil > pusher:)
> since the transplant, however, i can't cook that much. it
hurts to > simply exist! for breakfast, chris will usually go to
mickey d's and > get a big breakfast...for lunch, we don't usually eat..i
know i > know....bad us:) we are too tired or not hungry. for
dinner, 2 > breads, one veggie and a meat. dinner i almost always
cook, > regardless of how i feel. since he is not on the renal
diet anymore, > it can just throw stuff together. it's a bit easier than
eating > certain foods, and low cholesterol,potassium,sodium,sugar
etc etc. > we can skip lunch 'cuz when he takes his meds for 9 a.m.,
his sugar > gets pretty high. when he wakes up it is sometimes high,
b/c he takes > his meds 9 a.m. and 9 p.m.
> i think that's it
Hi again. Now don't take this as judgmental, it's not. But
for Chris to have so many complications he probably had
uncontrolled numbers for quite a while before this point.
What he eats now is probably way better than it was, even
with the "big breakfast" ;) A typical diabetic diet is a lot
easier to put together than a renal diet as you have found
out.
When diabetics are put on prednisone - even temporarily - a
good doctor also prescribes cutting the carbs for that
period. It is the one part of that equation that you CAN
control. You can lessen the effects of the medication. That
is not to say that he has to go low carb but lower carb.
There are plenty of free vegetables that can help take the
place of the high carb portion of the diet. Does he have an
endo? And does he choose how much insulin he is going to
shoot for a specific meal? (i.e. a specific carb amount).
What blood pressure meds does he take? Has he thought about
getting an insulin pump? Anyway, by tomorrow you will have
got lots of messages from insulin users I am sure. There is
a lot of collective experience in this newsgroup re insulin.
You need to look after YOU too, don't forget that.
Re: new to ng -- Posted by Rainey on 12-11-04 14:40
> Hi again. Now don't take this as judgmental, it's not. But
> for Chris to have so many complications he probably had
> uncontrolled numbers for quite a while before this point.
> What he eats now is probably way better than it was, even
> with the "big breakfast" ;) A typical diabetic diet is a lot
> easier to put together than a renal diet as you have found
> out.
you are right. before we met, he was trying his hardest to be "normal" i.e.
not taking his shots and eating what he wanted. i am pre-nursing and come
from a family of nurses:) once we got together, i did my best to look after
him. except he had no health insurance!!!! he didn't qualify for medicaid
b/c of him and his dad owning their own business, and private health ins.
was too expensive for someone with pre-existing conditions. i got him to go
to charity hospital once....it took him over 29 hours to get seen in the
emergency room, and all the dregs of society go there, so he was up
overnight with crackheads and such. i couldn't talk him into going again.
chris' dad knows a doctor, so in the end of july, he did a urine test to
check his BUN and creatnine levels. we knew something was up b/c he was
holding a ridiculous amount of fluid. (over 40 lbs we found out later). he
was hospitalized and diagnosed with ESRD. it took him becoming disabled to
get health insurance. he gets medicare and medicaid now.
> When diabetics are put on prednisone - even temporarily - a
> good doctor also prescribes cutting the carbs for that
> period. It is the one part of that equation that you CAN
> control. You can lessen the effects of the medication. That
> is not to say that he has to go low carb but lower carb.
> There are plenty of free vegetables that can help take the
> place of the high carb portion of the diet. Does he have an
> endo?
nope. he had one all the times he was hospitalized. he sees his kindey
specialists, his transplant doctor is his doctor for the rest of his life
now, and his primary care physician is internal medicine/nephrology. between
these 3 they have devised his insulin and menu.
And does he choose how much insulin he is going to > shoot for a specific meal? (i.e. a specific carb amount).
since he has had diabetes so long, the doctors could tell he knew how to
dose himself, so while his body is getting used to the kidney for the next
few months they put him on a sliding scale. pretty much- we test his sugar
before and after meals. he takes no less than 5 units before meals, no more
than whatever is needed to bring his sugar down. we test an hour after meals
too. it is how we figure out what he can and cannot have, by testing his
sugar, blood pressure and temperature. > What blood pressure meds does he take?
since the transplant, he has only needed Norvasc for his pressure. he is
still on a low salt diet, but it is not as strict as it used to be.
and yes, i did mean bread exchanges. sorry for not making myself clear.
rainey
Re: new to ng -- Posted by Mack® on 12-13-04 19:32
On Sat, 11 Dec 2004 16:40:04 -0600, "Rainey"
Screamed something into the void that sounded like:
>And does he choose how much insulin he is going to
>> shoot for a specific meal? (i.e. a specific carb amount).
>
>since he has had diabetes so long, the doctors could tell he knew how to
>dose himself, so while his body is getting used to the kidney for the next
>few months they put him on a sliding scale. pretty much- we test his sugar
>before and after meals. he takes no less than 5 units before meals, no more
>than whatever is needed to bring his sugar down. we test an hour after meals
>too. it is how we figure out what he can and cannot have, by testing his
>sugar, blood pressure and temperature.
the how to section on bolusing at the http://www.insulin-pumpers.org
site can be applied to calculating meal doses via injection. it shows
how to figure out how much 1 unit of insulin will affect BG and how 15
grams of carbs (1 carb serving) will effect BG and how to adjust
insulin (novolog/humalog) based on that ratio to pre meal BG plus
amount of carbs to be eaten.
for me the math goes like this:
my target BG is always 130 mg/dl (prone to extremely severe hypos)
so if my BG was 200 I would go 200 - 130 = 70 / (divided by)40 = 1.75
units of novolog. by syringe that would rounded to 2 units. If I
were to eat say 45 grams of carbs that would 1 unit for every 15 grams
carbs for 4 units of novolog for the whole meal plus 2 units to cover
the excess BG for a total of 6 units. this is what works for me at
the present time.
Māck©®
Type 1 since 1975
http://www.alt-support-diabetes.org
http://www.diabetic-talk.org
http://www.insulin-pumpers.org
"To announce that there must be no criticism of the
President, or that we are to stand by the President
right or wrong, is not only unpatriotic and servile,
but is morally treasonable to the American public."
...Theodore Roosevelt
(o o)
--ooO-(_)-Ooo--------------------
Re: new to ng -- Posted by Klaas Oosterveld on 12-14-04 08:47
Mack® wrote: > On Sat, 11 Dec 2004 16:40:04 -0600, "Rainey"
Hit the road Mack. Again, this (nl.support.diabetes) is a Dutch speaking
newsgroup!
Klo (dat heb je ervan als je voor de naamgeving van Nederlandstalige
nieuwsgroepen Engelse kreten [support] gebruikt...)
Re: new to ng -- Posted by Mack® on 12-13-04 19:20
On Fri, 10 Dec 2004 20:17:48 -0600, "Rainey"
Screamed something into the void that sounded like:
>> Chris type 1 or 2? Diabetes control is more about carb
>> control rather than calorie control, perhaps you can give
>> the group an insight into Chris's daily diet regime? Control
>> is difficult with the drugs you mentioned being needed for
>> anti rejection but it may not be an impossibility. Sorry
>> that you both are going through such a trying time,
>> physically and emotionally.
>
>chris and i are both 26. he is a type 1 diabetic.
>i usually cook every meal, as chris and his dad own their own company, so
>even tho he is not able to work, he can still be a pencil pusher:)
>since the transplant, however, i can't cook that much. it hurts to simply
>exist! for breakfast, chris will usually go to mickey d's and get a big
>breakfast...for lunch, we don't usually eat..i know i know....bad us:) we
>are too tired or not hungry. for dinner, 2 breads, one veggie and a meat.
>dinner i almost always cook, regardless of how i feel. since he is not on
>the renal diet anymore, it can just throw stuff together. it's a bit easier
>than eating certain foods, and low cholesterol,potassium,sodium,sugar etc
>etc.
>we can skip lunch 'cuz when he takes his meds for 9 a.m., his sugar gets
>pretty high. when he wakes up it is sometimes high, b/c he takes his meds 9
>a.m. and 9 p.m.
>i think that's it
>rainey
>
I wouldn't endorse the big breakfast from mCd's. But then again, it
may work for him. It doesn't for me. That is the time of the day my
body is most sensitive to carbs so I limit them the most and some
times go no carb. with gastroparesis it's a matter of timing your
food to work with the timing of the insulin(my case). we do have a
bit more freedom in what we can eat carb wise than type 2 diabetics.
they are dealing with insulin resistance and may or may not require
injected insulin along with anti resistance oral meds.
I'm curious, has your fiance ever discussed taking any oral
anti-insulin resistance meds, with his endo? Since he is taking
steroids it may be a useful therapy. But do not do it without doctors
consent. dinner sounds like a normal type 1 meal for an 1800 cal
diet.
try not skipping lunch altogether, rather eat all protein, like lunch
meat slices with cheese (turkey/ham/etc), no crackers or bread. It
may actually help to slow or stop the liver's release of glycogen
which get's converted to glucose during that time.
Māck©®
Type 1 since 1975
http://www.alt-support-diabetes.org
http://www.diabetic-talk.org
http://www.insulin-pumpers.org
"To announce that there must be no criticism of the
President, or that we are to stand by the President
right or wrong, is not only unpatriotic and servile,
but is morally treasonable to the American public."
...Theodore Roosevelt
(o o)
--ooO-(_)-Ooo--------------------
Re: new to ng -- Posted by Rainey on 12-13-04 19:29
good news- we got a referral and an appointment with an endo this friday
morning. i usually write everything down so i go prepared. the doctors are
usually amused i am not the patient, but the one with all the questions:) we
are going to ask the endo most of the things that have been brought to my
attention here:) she might refer us to a dietition.
from taking his lunchtime shot, no food then testing his sugar before the
dinner shot, it went from 47 (after lunch) to 235. in about 3 hours.....i
dunno...we are gonna talk to her (endo) about the pump too...so we'll see i
guess
rainey
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